He’s back in…

December 14th, 2009 by Pam Leave a reply »

It’s not as bad as it sounds, but it’s not happy.

On his way to get the CT he seized again. And like all good ERs, they automatically drug you up when that happens, so they put a bunch of lorazepam in him. Not sure how much, but for Jonathan, the standard 1 mg makes him pretty out of it.

So, when the neurologist saw him, she wasn’t happy that he was so out of it (slurred speech, slower reaction times and a little off balance when walking). None of this stopped him from eating the pizza, though. :) And, there’s no way to know if the symptoms are a result of the lorazepam or the result of having 2 seizures (he was mostly ok about an hour after the first seizure — when we were ordering pizza and all that). She came out and said that some people seem like they’re drunk when they’re given lorazepam (which is close to how Jonathan has seemed on it in the past), so… But, she was pretty insistent on having him stay the night so the epilepsy neurologists can see him in the morning. She said there would be no other way to see them other than getting admitted (that they have no open appointments for months) and we wouldn’t mind hearing what they have to say compared to the Tucson doc. We thought they might do some more tests to see about the new seizures, but they ruled out an MRI (since he just had one Sat night), so it’s basically to talk to the docs in the morning and they’re talking about upping his meds. We’ll be asking about making that a temporary thing since everyone’s pointing out that lack of sleep and food (he’s missed out on both since the surgery) could cause seizures and he may just need lots more rest and food to get back to not having seizures. And they plan on giving him some drugs to really make him sleep tonight. He just started getting a decent amount of food in him toward the end of the day, but hasn’t eaten any real amount of food since Thursday night (the pain from moving his mouth wasn’t helping).

We’re also going to see what they have to say about the language stuff — that seems to be a more prominent issue since the surgery. He had some real difficulty speaking about 15 minutes before his 1st seizure tonight and after the 2nd one he never fully regained his ability to get the words out — he said he knew what he wanted to say, but couldn’t get the words out of his mouth correctly (again, unsure if the lorazepam was aggravating his issues).

Anyway, that’s the latest. Pretty relieved we were still here, though it doesn’t sound like we’ll be getting any earth-shattering news tomorrow. The neurologist on call pretty much told us they’ll be suggesting increasing the meds and that’s about it and that we should expect to get discharged soon after meeting with them.

5 comments

  1. Elaine Barry says:

    Looks like it was a really good decision to stay in Phoenix. Hope they can get the seizures under control soon. Knocking him out last night was a good idea, but I wish they had done that Saturday night so you all wouldn’t be going through this now. Hope you and Kyan slept better, too.

  2. rweed says:

    I, too, am so glad you stayed in Phoenix. This is where Jonathan needs to be right now. Please give him our best and I hope today is a better day. xo to Kyan.

  3. brettsjohnson says:

    Hang in there, Buddy. You too, Pam.

  4. Jul says:

    Ugh, I hope today is better for you guys, too. Good luck with urging the docs for an only temporary increase in the meds. THx for the updates, hang in there guys.

  5. Pam says:

    Thanks, everyone. Seems like today was better — no seizing. We’ll be heading home tomorrow. The doc pretty much told us to head home. :)